It's been awhile again. And some things have happened. Yes. Things. Where to start. . . .
I start TMS next Monday, the 29th. I'll be having treatments five days a week for six weeks, followed by two treatments a week for three weeks. For a total of 36 treatments. I'm hopeful that this will work for me. I have to be hopeful as it's about the only hope I have. I will also going to group therapy on Wednesday nights to help with depression and the fallout of lessening symptoms. Yes, there is fallout from lessening symptoms - I mean, what do I do with my life when I'm not depressed? I've only really known depression. Who am I without it? The Southern Colorado TMS Center also does auricular acupuncture which they recommend for stress reduction. I'll probably give that a try. Why not, right? It might help and I need all the help I can get.
Next up, my psychiatrist had me tested for the MTHFR mutation. Which, of course, I have. Both copies of it. What does this mean? My body might not be able to metabolize folic acid which is necessary to make serotonin, dopamine, and norepinephrine. So, to counter this, I get to take the activated form of folic acid (L-methylfolate) for the rest of my life. In theory, this will allow my body to produce more of its own neurotransmitters and help with the depression. There's only anecdotal evidence to support this, but I'll take it. My other little ray of hope. I've been on the supplement for a few days now. No changes as of yet, but these things usually take weeks.
Those are the two big things. In other news, I haven't been doing great. I've been the opposite of great, really. I'm struggling, I'm drowning, barely keeping my head above water. I'm trying to find joy in the little things - a new song I like, the smell of rain, bumblebee butts - anything I can latch onto. Anything to help get me through the day. I wake up ready for bed, ready for the solace of sleep. I've found myself napping more and more, showering (or at least washing my hair) less and less. I'm starting to eat less (which may not be a bad thing - I mean, I need to lose weight, haha). I don't care what I wear or what I look like. I barely put on makeup. And all of this makes me hate myself more. Which increases my depression. It's an ugly cycle.
I'm really hoping the L-methylfolate and TMS help. I need them to. They have to - there's no other choice.
Wednesday, July 24, 2019
Monday, July 8, 2019
Monday 7/8/19
I was supposed to have therapy today. At noon. But my therapist forgot, somehow, and I didn't get to have my session. I sat in the waiting room with no receptionist, classical music blaring, until 12:36 - the time that I called my therapist, M, and left him a message that I had been there, apparently there was a miscommunication of sorts, and that I was leaving. I asked him to call me back so we could reschedule.
And I left.
And I didn't realize how much I needed therapy today until I didn't have it. I didn't realize how much I was struggling and needed to talk until I left M's office in tears. The slightest mishap breaking me down.
All I want to do anymore is sleep. I wake up looking forward to bedtime and that's it. I nap every day I don't work so that I can escape reality and my crummy feelings. Because sleep is like death without the commitment. It's my only escape.
I'm starting the process to be "approved" for TMS. I talked to D today and she sent me the paperwork I need to fill out and turn in. This causes a problem for me. It makes all my self-doubt, self-hate and self-worth issues scream even louder. I can't hum to myself and ignore the cacophony. No, I'm bombarded with a level of self loathing you can't even imagine, which brings my mood down even lower than before.
Why is this? Why don't I feel worthy of treatment? I know that I'm scared. Scared of what stable and well will look like. I've always been scared of that. When you've lived your entire life with depression . . . well, remission is terrifying. Is this why I don't feel worthy?
I'm also scared that I'll fail, that treatment won't work for me. And where will I be then? Because I can't keep living like this. I can't. This is no way to live.
Hubby has this grand plan that I'll start TMS, I'll get back in the gym, and I'll get better and lose weight and everything will be all hunky-dory. And I'm scared that I'll fail him. I don't even deserve treatment, let alone having it work well for me. I'm worried it won't work. That I won't get back in the gym. That I won't get better and/or lose weight.
I'm worried that everything will fall to pieces and I'll be left worse off than I am now because I will have lost my only shred of hope.
Damn I wish I could have had therapy today.
M did call me back, by the way, and apologized. He said I could smack him. And I might take him up on that because I have to wait another week to see him.
In the meantime I guess I keep plugging through, picking myself up by the boot straps. I just wish I knew how to keep doing that.
And I left.
And I didn't realize how much I needed therapy today until I didn't have it. I didn't realize how much I was struggling and needed to talk until I left M's office in tears. The slightest mishap breaking me down.
All I want to do anymore is sleep. I wake up looking forward to bedtime and that's it. I nap every day I don't work so that I can escape reality and my crummy feelings. Because sleep is like death without the commitment. It's my only escape.
I'm starting the process to be "approved" for TMS. I talked to D today and she sent me the paperwork I need to fill out and turn in. This causes a problem for me. It makes all my self-doubt, self-hate and self-worth issues scream even louder. I can't hum to myself and ignore the cacophony. No, I'm bombarded with a level of self loathing you can't even imagine, which brings my mood down even lower than before.
Why is this? Why don't I feel worthy of treatment? I know that I'm scared. Scared of what stable and well will look like. I've always been scared of that. When you've lived your entire life with depression . . . well, remission is terrifying. Is this why I don't feel worthy?
I'm also scared that I'll fail, that treatment won't work for me. And where will I be then? Because I can't keep living like this. I can't. This is no way to live.
Hubby has this grand plan that I'll start TMS, I'll get back in the gym, and I'll get better and lose weight and everything will be all hunky-dory. And I'm scared that I'll fail him. I don't even deserve treatment, let alone having it work well for me. I'm worried it won't work. That I won't get back in the gym. That I won't get better and/or lose weight.
I'm worried that everything will fall to pieces and I'll be left worse off than I am now because I will have lost my only shred of hope.
Damn I wish I could have had therapy today.
M did call me back, by the way, and apologized. He said I could smack him. And I might take him up on that because I have to wait another week to see him.
In the meantime I guess I keep plugging through, picking myself up by the boot straps. I just wish I knew how to keep doing that.
Thursday, July 4, 2019
Thursday 7/4/19
It's the 4th of July. Whoopie. I'm sitting on the couch listening to music, waiting for hubby's mom and brother to come over. So why not blog, right?
I actually feel like writing though. I feel like I need to get stuff out. I'm just not sure I can do it in a manner that makes sense.
Lets start with TMS. I met with Dr. H again on Tuesday. Hubby came. Dr. H informed me that he had spoken to my psychiatrist (Dr. M) and Dr. M believes my appropriate diagnosis is bipolar disorder. Meaning he won't change my diagnosis to depression in order for me to be approved for TMS. I understand. That would be fraud. But it sucks. Because, as Dr. H informed us, there is a 99.9% chance that insurance will NOT approve me for TMS. Then starts the appeal process. Dr. H said that I would not be approved at the 2nd tier of the process, but there's a small chance I could be approved at the 3rd tier when my case would be sent to a independent reviewer. This would take around 6 months. Six. Fucking. Months. Apparently the FDA is working on possibly approving bipolar disorder for TMS which would mean that my insurance would have to cover me. But again, that's 6 months to a year out and it's not guaranteed.
You have no idea how horrible I felt, sitting there listening to this news. My heart dropped. I felt hopeless and helpless.
Dr. H then began to tell us about another option: paying for TMS out of pocket. I put my head down. I know we can't afford this. But hubby asked, "How much?" Are you ready? $400 per treatment and the standard is 36 treatments. That's $14,400. Tears welled up in my eyes. Now, granted, that's not as much as I thought it was going to cost, but it's still $14,400 we don't have.
"If you're paying out of pocket we cut the cost in half," Dr. H said. "And we can set up a payment plan." Hubby sounded interested and started asking questions. I zoned out, head spinning, knowing that my hopes had been ripped from my hands.
We left, me in tears, so much so that hubby said he would drive us home. He said we would figure it out. Figure what out? I'm going to be denied coverage and we can't afford to pay out of pocket. I felt like screaming. Hubby started talking about our money in savings, about trying to sell more of my paintings, of starting a GoFundMe. He has all these ideas about how we could make it work. How yes, we truly can afford to pay out of pocket. He told me yesterday that he wants me to call Dr. H on Monday to get everything set up for me starting treatment.
He wants me to start treatment.
Here's where we come to the second thing I want to talk about: how I don't feel as though I'm worthy of going through treatment. I don't think I should. I'm already a burden, a drain, and now I'm going to be a financial burden. Again. Me being a financial burden is why we lost our house 4.5 years ago. I don't want a repeat. I don't want our family to struggle because of me.
This is eating me up inside. I truly don't think I'm worth the money. I don't think I'm worth the time or effort. I'm not worth it. This is me thinking I'd be better off dead. That everyone would be better off with me dead. I don't know how to reconcile this thinking. If I go through treatment with this mindset I'm sure to fail. I'm trying to counter all my negativity with positive thoughts. I'm trying not to catastrophize. I'm trying to remember all the good in my life, but these thoughts persist. I don't know what to do. I don't know why I don't feel worthy. I don't know why I feel as though I'm rubbish. I don't know why and I don't know what to do about it.
I have therapy coming up on Monday and my therapist definitely has his work cut out for him. I need to get this all sorted out. I need help. I need help.
I actually feel like writing though. I feel like I need to get stuff out. I'm just not sure I can do it in a manner that makes sense.
Lets start with TMS. I met with Dr. H again on Tuesday. Hubby came. Dr. H informed me that he had spoken to my psychiatrist (Dr. M) and Dr. M believes my appropriate diagnosis is bipolar disorder. Meaning he won't change my diagnosis to depression in order for me to be approved for TMS. I understand. That would be fraud. But it sucks. Because, as Dr. H informed us, there is a 99.9% chance that insurance will NOT approve me for TMS. Then starts the appeal process. Dr. H said that I would not be approved at the 2nd tier of the process, but there's a small chance I could be approved at the 3rd tier when my case would be sent to a independent reviewer. This would take around 6 months. Six. Fucking. Months. Apparently the FDA is working on possibly approving bipolar disorder for TMS which would mean that my insurance would have to cover me. But again, that's 6 months to a year out and it's not guaranteed.
You have no idea how horrible I felt, sitting there listening to this news. My heart dropped. I felt hopeless and helpless.
Dr. H then began to tell us about another option: paying for TMS out of pocket. I put my head down. I know we can't afford this. But hubby asked, "How much?" Are you ready? $400 per treatment and the standard is 36 treatments. That's $14,400. Tears welled up in my eyes. Now, granted, that's not as much as I thought it was going to cost, but it's still $14,400 we don't have.
"If you're paying out of pocket we cut the cost in half," Dr. H said. "And we can set up a payment plan." Hubby sounded interested and started asking questions. I zoned out, head spinning, knowing that my hopes had been ripped from my hands.
We left, me in tears, so much so that hubby said he would drive us home. He said we would figure it out. Figure what out? I'm going to be denied coverage and we can't afford to pay out of pocket. I felt like screaming. Hubby started talking about our money in savings, about trying to sell more of my paintings, of starting a GoFundMe. He has all these ideas about how we could make it work. How yes, we truly can afford to pay out of pocket. He told me yesterday that he wants me to call Dr. H on Monday to get everything set up for me starting treatment.
He wants me to start treatment.
Here's where we come to the second thing I want to talk about: how I don't feel as though I'm worthy of going through treatment. I don't think I should. I'm already a burden, a drain, and now I'm going to be a financial burden. Again. Me being a financial burden is why we lost our house 4.5 years ago. I don't want a repeat. I don't want our family to struggle because of me.
This is eating me up inside. I truly don't think I'm worth the money. I don't think I'm worth the time or effort. I'm not worth it. This is me thinking I'd be better off dead. That everyone would be better off with me dead. I don't know how to reconcile this thinking. If I go through treatment with this mindset I'm sure to fail. I'm trying to counter all my negativity with positive thoughts. I'm trying not to catastrophize. I'm trying to remember all the good in my life, but these thoughts persist. I don't know what to do. I don't know why I don't feel worthy. I don't know why I feel as though I'm rubbish. I don't know why and I don't know what to do about it.
I have therapy coming up on Monday and my therapist definitely has his work cut out for him. I need to get this all sorted out. I need help. I need help.
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